Resources

Genetic Disorders Bibliographies

Books

  • Health Care Guidelines for Individuals with Prader-Willi Syndrome

    This booklet provides health care guidelines, birth to adulthood, for the management of persons with Prader-Willi Syndrome.

  • Living with Genetic Syndromes Associated with Intellectual Disability

    The author describes the conditions of Down Syndrome, Williams Syndrome, Rubenstein-Taybe Syndrome, Fragile X, Fetal Alcohol, Prader-Willi, Angelman and Worlf-Hirschhorn Syndrome.

  • Living with Tourette Syndrome

    This book presents solid information on coping with all aspects of Tourette Syndrome from diagnoses to treatment and includes practical information on dealing with particular issues that can arise at school and work.

  • My Brother Has Fragile X

    This book is written by the eight-year-old younger brother of a sibling with fragile X syndrome. It chronicles the special experiences of living with a brother with fragile X syndrome.

  • Straight Talk about Psychiatric Medication for Kids

    This is a real how-to for anyone whose child is being treated with medication for psychiatric problems. This book will empower caregivers. The book is concise, well organized, and very easy to use (This essential book will provide the up-to-date information that will enable the reader to fully understand what the doctor is recommending and what their options are).