Resources

Genetic Disorders Bibliographies

Books

  • The Early Years

    This collection of articles is designed to help the families of young children with Prader-Willi Syndrome see what is happening in the lives of other children who have also received early diagnosis.

  • Tourette’s Syndrome: Tics, Obsessions, Compulsions

    A look at Tourette’s Syndrome from a clinical point of view, with an emphasis on research findings and studying individuals from a “whole person” perspective.

  • What Makes Ryan Tick?

    This update to Susan Hughes’ acclaimed Ryan: A Mother’s Story of her Hyperactive/Tourette Syndrome Child follows the difficult adolescent years of individuals with these syndromes and the success found through medication, family, and school support.

Videos

  • Educational Issues and Strategies

    The strategies discussed in this video are appropriate for all children with special needs since Fragile X Syndrome has many similarities with other disorders and learning disorders.

  • General Information for Parents

    Six videotapes relating to Prader-Willi Syndrome Association Annual National Conference held in San Diego in July 1999. Tape #1 - Keynote speaker Suzanne B. Cassidy presents an overview of Prader-Willi Syndrome Tape #2 - Part 1 - A panel of professionals and parents speaking on childhood development issues in PW children 0-5 years. Tape #3 - Part 2 - A panel of professionals and parents speaking on childhood development issues in PW children 0-5 years. Tape #4 - General information for parents. Tape #5 - Features UCLA professor Elizabeth Dykens sharing her observations on behavior strengths and weaknesses in persons with PW Tape #6 - Dr. Kenneth Jones speaks on endocrine issues, growth hormone therapy and diabetes in persons with PW.